The Association of People Living with Sickle Cell Disorder, APLSCD, has said it would continue to support indigent parents whose children died of sickle cell disease, leaving them distraught and in grief.
This was made known by the National Coordinator of the Association, Mrs Aisha Edward Maduagwu, while speaking to the Catholic Women Organization, Agulu Deanery, at their gathering at St Theresa Catholic Church Agulu.
Mrs Maduagwu who paid them a sickle cell sensitization visit, with the approval of the parish priest of Madonna Catholic Church and the Awka Catholic Diocesan Chaplain of the Association, Rev. Fr Dr Joel Okechukwu, said that the aid would come in form of both moral and material supports. She observed that some parents who lost their children to sickle cell complications oftentimes find it difficult to breakaway from the Association after the death of their wards due to the kind of attachment and bond they had formed with association.
She said that some of these parents are left without any kind of consolation after the death of their children living with sickle cell disease and they now see the association as their second home and a place where they are better understood. Mrs Maduagwu pointed out that the fight against sickle cell disease is multifaceted, while encouraging parents especially mothers not to hide their sickle cell wards at home in order to avoid stigmatization.
The CWO Organizer for Agulu Deanery expressed her elation on having Mrs Aisha come to speak to them on genotype education, and promised her their support and assistance always, especially on the sickle cell orphanage home.